Overall I am feeling really good! I am getting some energy back and sleeping better at night which makes me feel better during the day.
I had my post op with Doctor Florman, my surgeon today. He was a little concerned that there is still fluid on top of my skull as this poses a greater risk of infection. As he described the surgery: they removed the tumor which was attached to part of my brain membrane. The membrane keeps the fluid inside the skull. They covered the hole in the membrane, but it is impossible to sew up all the tiny leaks, so it may always leak a little. If the fluid builds up too much it could be uncomfortable and need to be drained which they can do but they don’t like to do this as the hole from the needle can be a port for infection. I have been told to stay upright as much as possible and maybe even sleep on an incline again to prevent the fluid from building up. I don’t really want to sleep on an incline as I don’t sleep well that way so I will try to stay vertical during the day as much as possible.
He also said it is very likely the tumor will grow back because it is impossible to know if every single cell was removed, and it probably wasn’t, during surgery. I will be getting MRI’s at regular intervals, more frequently at first, then if there is minimal to no growth less frequently. My first one will be in two months.
He said I really shouldn’t be getting sweaty or lifting or bending over still because of the fluid build up, so I am still on “light duty”.
My mother left today to head back to Virginia. I don’t know what we would have done without her. She took the boys out every afternoon so I could have some quiet rest time. I think this time really aided in my recovery.
I am thrilled to report that I haven’t had a headache since the surgery. My eyes are improved a little, but they have regressed from the amazingness that was my eyesight right after surgery. I don’t know if that is because of the fluid build up or my eyes just going back to normal. I am still wearing my glasses which is a little disappointing.
I will leave you with the following quote:
“When you arise in the morning,
think of what a precious privilege it is to be alive –
to breath, to think, to enjoy, to love.”
I am certainly grateful to be alive, to watch my children grow and laugh, to hug my family and my friends a little tighter, to eat wonderful food prepared with love by friends and family, to feel the sun on my face and the crispness of the winter air – to breath, to think, to enjoy, to love…